The REBECCA Google Chrome Plugin (the ‘Plugin) is developed and provided in the context of a European research project called ‘REsearch on BrEast Cancer induced chronic conditions supported by Causal Analysis of multi-source data’ (the ‘REBECCA project’). More information on the REBECCA project and the project partners (jointly: ‘us’ or ‘we’ or ‘Joint Controllers’) that are involved can be found on the project website (https://cordis.europa.eu/project/id/965231) of the European Commission as well as on the REBECCA website (https://rebeccaproject.eu/). Although the greatest possible care has been exercised to ensure the correctness and completeness of the information contained in the REBECCA Plugin, we do not accept any responsibility or liability for the content thereof. You are responsible for the content that you upload in the Plugin. By registering your account and by using the REBECCA Plugin, you provide us with data, such as your unique username and your online interactions and activity (e.g. websites visited). By accepting these terms you agree that the project partners may use this data for the purposes of implementing the REBECCA project. In view of the nature of the Plugin and the REBECCA project we may decide, at our sole discretion, to delete certain uploaded data that do not comply with the project’s scope. We may also decide to terminate your registration and delete all data that have been uploaded via the Plugin with immediate effect in the event you do not use the Plugin for its intended purposes. Furthermore, we may at any time amend this disclaimer and policy. Amendments will enter into effect as soon as you provide your consent through the Plugin. If you do not agree to changes to the terms, we may need to terminate your registration in the Plugin and delete all data that you provided.
In order to use the REBECCA Plugin you must be a patient participating in the clinical trial in one of the clinical partners of REBECCA: La Fundación para la Investigación del Hospital Clínico de la Comunidad Valenciana (INCLIVA) in Spain, Stavanger University hospital (SUH) in Norway, or in a hospital of Region Stockholm (RSTO) in Sweden.
REBECCA partners jointly determine the means and purposes of the processing of your Personal Data occurring within the REBECCA Plugin. For that reason they are joint controllers and have entered into a relevant joint controllership agreement which is available for review upon request. If you wish to receive a copy please reach out to the contact point for your country (see contact details provide below).
What information is collected?
By using this Plugin, you provide us with your Personal Data. In the course of browsing the Internet on your PC/laptop, we receive Personal Data from your browser. You will be assigned a unique username (pseudonym), login to the Plugin and provide your consent for the Plugin to track your online activity. The Plugin collects and stores Personal Data including the websites visited, the search queries performed, social profiles and the activity in them. All uploaded data are pseudonymized and connected with this username. No personally identifiable information (e.g., names, IPs) is collected.
You can customize the monitoring at any time from the Plugin settings page. From there, you can exclude certain browsing activities (e.g., websites visited) from being monitored and define specific sources to be excluded from monitoring. You can also delete any uploaded data you feel uncomfortable being analysed or completely erase all collected data. Moreover you can define a time delay (e.g. 24 hours) after which data are allowed to be processed by REBECCA system. This means that data will be processed only after the specified time period has elapsed from the time the data were collected.
What is the legal basis for the processing of your Personal Data?
How is your information used?
We collect your Personal Data in order to develop analysis tools that, in the next stage of REBECCA, will be used to study the complex array of lifestyle parameters that might be associated with breast cancer recovery. The analysis results will then be used to create clinical guidelines and practices for post-cancer treatment.
More information about our research can be found at https://rebeccaproject.eu/.
We also use your Personal Data to develop and test new features of the REBECCA Plugin and to provide technical support and troubleshooting activities.
How is your information shared?
Your Personal Data is only shared between the REBECCA project partners and occasionally with our external vendors (such as providers of cloud infrastructure services that we use to implement the REBECCA tools, and with whom we entered into appropriate data processing agreements), all of whom are located within the European Economic Area. Your personal data is not stored, used or exported outside the European Economic Area (i.e. European Union and Norway).
How is your information secured?
Personal Data collected through the REBECCA Plugin is treated as confidential. Your Personal Data will not be lent, rented, sold or made public. We have implemented electronic and physical security measures, such as secure and encrypted connections and access on a need-to-know basis only. Your data will be pseudonymised. Authentication and authorisation mechanisms have been implemented to regulate access both to the REBECCA Plugin and to your Personal Data.
How long will we retain your data?
Generally, your Personal Data will only be stored for the term of the REBECCA project. After the REBECCA project ends, the data collected via the Plugin will be stored on the REBECCA platform for a period of 12 months, upon the lapse of which the data will be irreversibly erased from the server (as the REBECCA platform will be shut down). Please note however, that prior to shut down, your Personal Data (organized in data sets) will be exported from the REBECCA platform to the clinical partner you enrolled with. Further processing by that clinical partner will take place in accordance with the patient consent form that you signed when enrolling to participate in the REBECCA project. That clinical partner will be an independent controller of your Personal Data from that moment on.
Since REBECCA participates in Open Research Data Pilot, materials generated under the REBECCA project will be disseminated to the public in accordance with the Open Access Strategy and the REBECCA Grant Agreement. However, any Personal Data that they might contain shall be anonymized. Any personal data that is not anonymized, and could be used to identify individuals, falls outside the scope of the Open Access Strategy and thus will not be made open. At any time you may delete the REBECCA Plugin from your device. This will not affect the processing of your data collected via the Plugin prior to your deletion of the REBECCA Plugin.
Rights of data subjects
You have the right of access, the right to rectification, the right to erasure (also known as the right to be forgotten), the right to object to or to restrict the processing of your Personal Data, the right to withdraw your consent as well as the right to data portability (to the extent permitted by law). Such a request can be submitted electronically to any of the REBECCA partners, who may forward your request to another project partner that will decide upon your request. You can submit your request using the contact details provided below.
If you are dissatisfied with the processing of your data by us, you have the right to contact the competent data protection authority of your country (for a complete list of all national data protection authorities go to https://edpb.europa.eu/about-edpb/about-edpb/members_en).
Centre for Research and Technology Hellas is one of the REBECCA partners responsible for the processing occurring within the REBECCA Plugin and acts as a primary contact point with respect to REBECCA Plugin functionalities and troubleshooting.
If you have any questions, complaints or requests regarding the use of your personal data, you can contact Centre for Research and Technology Hellas using the contact details below:
Centre for Research and Technology Hellas
6th km Charilaou-Thermi Rd
Tel.: +30 2310 498100
Principal Investigator: Dr. Symeon Papadopoulos
Email: [email protected]
For Spain you may also contact:
Rafael Barajas Cenobio (DPO)
Email: [email protected]
Phone number: +34 96 197 35 35
INCLIVA, Avenida Menéndez Pelayo 4 acc. 46010
For Norway you may also contact:
Kristin Jonsdottir (PhD),
The Research Department, Stavanger University Hospital
E-mail: [email protected]
Phone: +47-416 31 063
For Sweden you may also contact:
Department of Biosciences and Nutrition, Karolinska Institute
E-mail: [email protected];
Phone number: +46 (0) 735 056 651
A list of all of the REBECCA partners (with links to their individual websites and contact details) is available here: https://rebeccaproject.eu/consortium/.
 Withdrawing your consent will not affect the lawfulness of processing based on consent that took place before its withdrawal.